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Tatterfield: Hard Skinned, But Not Hard-Hearted

Kim Tatterfield is an advocate for helping those with Scleroderma, a disease she suffers with.

 

Name: Kim Tatterfield

Street: Stone Street

Family: Daughter Kirsten and son Erik

Occupation: Paralegal Teacher at the Salter School in Malden

Hobbies: "I really enjoy sleeping! I work hard, I am coping with a new disease, and really like to sleep. When I am not sleeping I love to go to the beach."

Kim was diagnosed ten months ago with Scleroderma, a progressive disease effecting the skin and connective tissue (including cartilage, bone, fat, and the tissue that supports the nerves and blood vessels throughout the body.) There are two major forms of the disorder; localized scleroderma mainly affects the skin, while systemic scleroderma, sometimes known as systemic sclerosis, affects the smaller blood vessels and internal organs of the body.

Although Kim was diagnosed only ten months ago, she has already suffered more than most. Her skin is noticeably tight and her face and hands have signifigant changes. Although Scleroderma is a disease of one (meaning it has different effects on everyone) it doesn't usually progress quickly. But, because Kim was diagnosed within the past year, she is eligible for a clinical trial of a new drug called Fresolimumab.  Kim saw a noticeable change in her skin after the first treatment, which is promising for those suffering from this disease.

Kim said she is frustrated with the lack of attention Scleroderma and other auto-immune diseases receive. "I hate this disease and really wish there was more awareness... it effects a lot of people and there is a whole community of people suffering in silence with this relatively unknown disease".

"It's also frustrating that this disease is relatively invisible," Kim said. "Breathing, movement, joint pain and others and when you get out of you car in a handicapped spot, it's hard to deal with the glares of others who think I look fine."

Favorite Book: "A Million Little Pieces" by James Frey

Favorite Movie: "GI Jane"

Favorite Shop: Savers

Favorite Eatery: Chuck's Restaurant

Dream Vacation: "Any of the Sandals Resorts! The commercials look so amazing!"

How long have you lived in Danvers: Twelve years

Why did you choose Danvers: "The school system is what brought me here."

What would you change in town: "I can't think of anything I would want to change."

Two local events that are coming up benefiting Scleroderma research are:

  • The 2011 Sully Cup Golf Tournament to Cure Scleroderma at the Thomson Country Club in North Reading on Monday, August 29. For more information see the facebook page.
  • The Stepping Out to Cure Scleroderma Walk in Topsfield on September 18. For more info contact the New England Scleroderma Chapter at 978-887-0658
About this column: "Faces About Town" is a regular column featuring Danvers residents, town employees or other locals who have made significant contributions to the community. Related Topics: Scleroderma

Dawn Kehoe Frost

12:13 am on Monday, August 1, 2011

Great interview and article that will hopefully raise more awareness for Scleroderma!

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Kimberly Darmis Radomski

10:17 am on Tuesday, August 2, 2011

SCLERODERMA IS AN AUTOIMMUNE RELATED DISEASE AS MY MOTHER SUFFERS FROM THIS AS WELL AS REYNAUDS, LUPUS, DISCOID LUPUS, MULTIPLE SCLEROSIS & MORE. IT WOULD BE GREAT IF THE DOCTORS TODAY COULD ALL EDUCATE THEM SELVE'S ON THESE AND MANY MORE AUTOIMMUNE DISEASE'S & THEIR SYMPTOMS... AS MANY OF THEM WILL TELL YOU THAT THEY DON'T KNOW, OR ITS ALL IN YOUR HEAD.

Giane Giuzio

7:41 pm on Friday, August 5, 2011

I discovered the disease for over two years Systemic Scleroderma
Tradução do português para inglês
Doctors should treat patients more closely with Scleroderma more closely, some patients lose their lives, which leads to that the convenience or lack of love for others in this profession. Of course not all doctors who are part of the scum in this state of neglect patients. I'm proof of that today I can confirm that went through several doctors diagnosis absurd. It was just the pain of such FIBRIOMIALGIA, A GUT
LAZY. Pain in hands or body, REFLUX, NERVOUS GASTRITIS, until the day that I had Scleroderma was diagnosed a rare disease which affected the whole body, which hit my digestive system (including the SURGERY OF GASTRO-ESOPHAGEAL REFLUX /), have difficulty eating when it is cold only the grace of God to strengthen me in those days. The complaint of a patient should be taken seriously, very important to hear the doctor asking his patient and several tests. To clarify the patient's family to help in difficult times, the support helps a lot to face the battle of doença.Aqui in Brazil there are few doctors who take this disease seriously.
Giane Giuzio
Brazil
São Paulo/SP

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