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Local Woman With Rare Genetic Disorder Writes Book About Life Experiences

Sheila Radziewicz has overcome a rare and often fatal disability to become an independent adult, motivational speaker and advocate for others living with disabilities today.

Sheila Radziewicz gets in some riding at Windrush Farm in North Andover. Credit: Courtesy
Sheila Radziewicz gets in some riding at Windrush Farm in North Andover. Credit: Courtesy
Sheila Radziewicz was born with a rare genetic disorder called TAR (thrombocytopenia absent radius) syndrome. She has hands, but no arms and no kneecaps and a hole in her heart. Doctors didn't expect her to survive.

Today, however, the 35-year-old Peabody resident works as a legal advocate for others living with disabilities and facing discrimination, is a second-degree black belt in tae kwon do, has a master's degree in criminal justice, spins fire staff, scuba dives, is a motivational speaker and just wrote a book.

Radziewicz has taken to GoFundMe to raise support toward publishing the book, which she says is about her experiences becoming independent while living with a disability.

You can check her own website here and the GoFundMe page here

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